Genetic privacy alert: 23andMe’s bankruptcy puts your DNA data at risk

With user data now part of potential asset sales, EFF is urging all customers to act now:

Download your data — store it securely for personal use
Delete your account + data — this includes reports, raw data, and family tree connections
Revoke research consent — and explicitly request sample destruction

Why it matters:
• DNA reveals more than identity — it exposes health, ancestry, and family connections
• The data doesn’t just belong to you — it can implicate relatives who never opted in
• A new owner might not respect your privacy

Take control now. Your genes deserve better security than a bankruptcy fire sale.

#Privacy #DNA #DataRights #CyberSecurity #23andMe #DigitalRisk #security #privacy #cloud #infosec

https://www.eff.org/deeplinks/2025/03/how-delete-your-23andme-data

I guess the #23andme bankruptcy is old news but I wrote about their racist and techno-capitalist premises back in 2018.

https://thenewinquiry.com/immortal-techniques/

#QuestionOfTheWeek: What are your DNA ethnicity estimates? Any surprises? Share your percentages & discoveries! Compare with relatives to break through brick walls.
https://www.youtube.com/watch?v=nwimjqnLbPw&list=PLEqK4ICkQWXQXODTRG6UGGZ4cmXiMRmD4

#DNADay
#CollaborativeGenealogy #AncestryDNA #23andMe #MyHeritage #FamilyTreeDNA #GEDMatch

Congress has questions about #23andMe bankruptcy

https://techcrunch.com/2025/04/19/congress-has-questions-about-23andme-bankruptcy/

23andMe bankruptcy under congressional investigation for customer data

congressmen are the latest government officials to raise concerns about 23andMe’s commitment to data security, as the House Committee on Oversight and Government Reform and the Federal Trade Commission have sent the company similar letters in recent weeks.

#23andMe #DNA #genetics #bankruptcy #business #FTC #security #cybersecurity #infosec #data #bigdata

https://www.cnbc.com/2025/04/17/23andme-bankruptcy-investigation-genetic-data-congress.html

Stiftung Warentest hat DNA-Tests geprüft

https://www.compgen.de/2025/04/stiftung-warentest-hat-dna-tests-geprueft/

#Congress Moves Closer to Risky Internet #Takedown Law | EFFector 37.4

This edition of EFFector explains how you can help us push back against the TAKE IT DOWN Act, an internet #censorship law; why we oppose site-blocking legislation, found in two upcoming bills; and how to delete your data from #23andMe.
#rights #takeitdownact #siteblocking #privacy

https://www.eff.org/deeplinks/2025/04/congress-moves-closer-risky-internet-takedown-law-effector-374

Bankrupt Genetic Data: Minimizing and #Privacy-Protecting Data from the Start

https://epic.org/bankrupt-genetic-data-minimizing-and-privacy-protecting-data-from-the-start/

#23andMe is potentially selling more than just #genetic #data. The personal survey info is also a #privacy problem.

https://www.cbsnews.com/news/23andme-genetic-data-personal-survey-information-privacy/
https://doi.org/10.1016/j.annepidem.2016.05.007

Stiftung Warentest hat fünf Anbieter von DNA-Tests zur Ahnenforschung geprüft

#DNAGenealogie. Der Vergleich zeigt Stärken, Schwächen und Datenschutzrisiken bei Herkunftsanalysen und Verwandtschaftsmatching.

https://www.test.de/Ahnenforschung-Per-DNA-Test-die-eigene-Herkunft-ergruenden-5-Portale-im-Vergleich-6210345-0/ (€)

#paywalled #Ahnenforschung #StiftungWarentest #Ancestry #MyHeritage #23andMe #FamilyTreeDNA #LivingDNA #DNA #Ethik #Datenschutz #Strafverfolgung #Völkerwanderung #Ethnie #GEDCOM #Test #Vergleich #DNATest #DSGVO #AGB #Herkunftsanalyse
@ahnenforschung

getting registerd via e-mail on an "anonymous" image board is almost as dumb as sending your DNA to some shitty corporation to see "where you are from" and expecting your data to be safe.

Are there any sane people left on this rock?

#4chan #23AndMe #

Watch this week's episode of Cyberside Chats! What happens to sensitive data when a company built on it collapses? In this episode, @sherridavidoff and @MDurrin dive into the 23andMe data breach, its March 2025 bankruptcy, and the lessons we can learn from the Flyclear shutdown of 2009.

Watch or listen as Sherri and Matt share:

What happens to biometric & genetic data when a vendor goes under?
Where did security protections fail?
What should CISOs & corporate security leaders do differently?
Actionable insights and a roadmap for corporate resilience.

Watch the video: https://youtu.be/6a003fd2qmM

Listen to the podcast: https://www.chatcyberside.com/e/privacy-at-risk-the-23andme-data-breach-uncovered/

A week in security (April 7 – April 13) https://www.malwarebytes.com/blog/news/2025/04/a-week-in-security-april-7-april-13 #PallMall #whatsapp #23andMe #News

Your 23andMe genetic data could be bought by China, senator warns https://www.malwarebytes.com/blog/news/2025/04/your-23andme-genetic-data-could-be-bought-by-china-senator-warns #geneticdata #Privacy #23andMe #Chinese #News

Deletion of family's #23andme data complete.

If you haven't done so already, do it asap to keep your generic data out of the hands of an unknown acquirer.

What's happening with 23andMe, and why should you be concerned?

Join us on this week's Shared Security Podcast as we discuss what their financial troubles could mean for your most personal data.

Watch on YouTube:
https://youtu.be/Rv5GVfv4TeQ

Listen and subscribe!
https://sharedsecurity.net/2025/04/07/the-23andme-collapse-signal-gate-fallout/

https://sharedsecurity.net/subscribe

«#23andMe is potentially selling more than just genetic data – the personal survey info it collected is just as much a privacy problem»

I’d argue that data is even more problematic. They’ve always guarded the phenotype data that customers provide tooth & nail, probably as that’s where they saw the profit. Eg you could always download your genetic data, but not your survey responses. https://theconversation.com/23andme-is-potentially-selling-more-than-just-genetic-data-the-personal-survey-info-it-collected-is-just-as-much-a-privacy-problem-253220

This is insane. #AIEthics #dutyOfCare #23AndMe via @UlrichJunker https://newsie.social/@TheConversationUS/114283350656160101

Где заканчивается наука и начинается маркетинг: сравниваю генетические тесты на происхождение

Всем привет! Меня зовут Павел, я главный редактор блога “Онлайн патента” на Хабре. Сегодня я расскажу о своем опыте взаимодействия с генетическими тестами. Но перед этим небольшое лирическое отступление. Компания 23andMe, один из лидеров рынка ДНК-тестирования, подала заявление о банкротстве по главе 11 (реорганизация). Это решение связано с многомиллионными убытками и последствиями масштабной утечки данных в конце 2023 года, когда хакеры получили доступ к информации 6,9 млн пользователей. Подозреваю, что одним из них был я.

https://habr.com/ru/companies/onlinepatent/articles/897874/

#23andMe used customer data for research, but offered an opt-out option. How many users actively chose to share their data, and how many simply didn't care to think about it? Also, how many users bought a kit years ago and are unaware of what is happening now?

DTC genetic testing was a great way to empower people, but #empowerment comes with a cost.