For everyone trying to delete your 23andMe data...you can't
When you press delete on your 23andMe account and data, it will vanish from the site. But a clause in the privacy statement and 23andMe’s adherence to laboratory rules mean that your genetic background is still there, somewhere, in the company’s records.
#23andMe #bankruptcy #DNA #genetics #privacy #biotech #business #technology
https://www.sfgate.com/tech/article/california-dna-delete-23andme-bankruptcy-19830420.php
Das einst angesagte US-Unternehmen, das Gentests für Privatleute anbot, meldete am 24. März seine Insolvenz. Jetzt liegt das Schicksal der genetischen Daten von 15 Millionen Menschen in den Händen eines Konkursrichters.
Ars Technica: FTC: 23andMe buyer must honor firm’s privacy promises for genetic data. “Federal Trade Commission Chairman Andrew Ferguson said he’s keeping an eye on 23andMe’s bankruptcy proceeding and the company’s planned sale because of privacy concerns related to genetic testing data.”
#23andMe is potentially selling more than just #geneticdata – the #personal survey info it collected is just as much a #privacy problem
#Genetic data repo #OpenSNP to self-destruct before authoritarians weaponize it
The reason, according to #bioinformatics researcher Bastian Greshake Tzovaras, one of the founders of the project, is the dissolution of genetic testing biz #23andMe and the potential weaponization of genetic data by #farright #authoritarian regimes.
https://www.theregister.com/2025/04/01/opensnp_shutdown/
https://www.wired.com/story/how-to-delete-your-data-from-23andme/
I've got a lot of thoughts about this, but the overriding one is gratitude that these folks finally woke up.
"Tzovaras had hoped that access to genetic data would improve human health and medicine, but now considers that aspiration naive. His 'bleaker' and more 'sober' view today is that providing food security and access to stable housing would have a more significant impact on human health than finding genetic answers to common diseases that follow from social and environmental problems, such as food and housing insecurity."
#openSNP
#genetics
#23andMe
#USPol
Genetic data sharing service openSNP to close down
https://www.theregister.com/2025/04/01/opensnp_shutdown/
Genetik-Datenleak in den USA
Die Geschichte eines digitalen Super-GAUs und seiner Folgen
taz, 1.04.2025
"Das Ahnenforschungsportal 23andMe wollte die großen Rätsel der Menschheit lösen. Doch nach einem Hack landeten viele hochsensible Daten im Darknet."
Hier weiterlesen:
https://taz.de/Genetik-Datenleak-in-den-USA/!6076336/
Niemand ist überrascht. #23andme
https://mastodon.social/@tazgetroete/114267110823837679
Bonus #Joke :
Q: What do you get when you inject human DNA into a goat?
A: Banned from the petting zoo.
(It's #HootinTootinTuesday again! Post some jokes or funny memes under this hashtag today, and bring lots of smiles to #Mastodon.)
I hope an organization with ethics aligned with data donors wins the auction(!) of #23andMe collected DNA.
Otherwise, some insurance company or a pro-eugenics fascist player could do some very bad things.
#23andme has distinct echoes of the Westminster cemeteries scandal
Having never enabled—indeed, having actively broken!—any overt or covert method of biometric identification ever provided to me by a business (unless for acute medical reasons), I'm amazed that 23andMe had a single customer.
That company would have, like, had to pay me a small fortune to even consider dealing with it. Thus, I don't think any 23AndMe customer can, in good faith, make fun of anyone else for playing #FAFO games. Which are surprisingly popular, in general, lately.
Just deleted my #23andMe data. I wanted to wait until I got a copy of that data but it was taking too long. Here's the steps if you haven't done it already.
Log in to your account
Go to "settings"
Scroll to "23andMe data"
Click "view"
Scroll to "delete data"
Click "permanently delete data"
Confirm your request
DATE: March 31, 2025 at 04:38PM
SOURCE: HEALTHCARE INFO SECURITY
Direct article link at end of text block below.
@FTC: @23andMe's Buyer Must Uphold Co.'s Data #Privacy Pledge https://t.co/IFNSWyTT6J #FTC #23andMe
Here are any URLs found in the article text:
Articles can be found by scrolling down the page at https://www.healthcareinfosecurity.com/ under the title "Latest"
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Healthcare security & privacy posts not related to IT or infosec are at @HIPAABot . Even so, they mix in some infosec with the legal & regulatory information.
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